E2: Building virtual communities

Wednesday 22 June 2022 | 13:15-14:30

Format: Presentation
Stream: Person and Family-Centred Care
Content filters: Co-presented with patients, service users or carers, Includes examples of using technology to enable change

(Part A) Learning network – works! Experiences of co-production in pediatric diabetes care in Sweden

The learning network in the care of paediatric diabetes has captured the opportunity that the increased digitalisation has brought to meet regularly online. Patient representatives and diabetes teams (n=11) from all over Sweden have during 2 x 12 months shared their experiences, challenges and improvement efforts. Together, the teams have continued to learn from data collected in the Swedish Paediatric Diabetes Registry and have followed the same global aim: to improve Diabetes Care. This session will describe more about how teams can work actively with patient representatives and the methodology how to bring together everyone’s experiences in the work with improvements.

Kerstin Ramfelt, Region Jönköping; Sweden

Cecilia Fältskog, Patient Council; Sweden

(Part B) A digital, social community to support young people with Type 1 Diabetes

We will describe a digital social community developed in co-design that enables young people with Type 1 Diabetes from all over Sweden to support each other by sharing their experiences. The lived knowledge from members can be eligible for diabetes teams in their improvement work. The platform has web-based forums where diabetes teams can meet up with members and discuss improvements, which leads to an active coproduction of healthcare services. You will meet the community manager, with own experiences of living with type 1 diabetes since adolescence.

Christina Petersson, Region Jönköping; Sweden

Sofia Segersson, Patient Entrepreneur; Sweden